Frequently asked questions.

  • Long QT Syndrome (LQTS) is a heart rhythm disorder that affects the way your heart beats. It can cause fast, irregular heartbeats (arrhythmias) that may lead to fainting, seizures, or even sudden cardiac arrest.

  • The "QT" refers to a segment on an electrocardiogram (ECG or EKG) — it represents the time it takes the heart’s electrical system to recharge between beats. In LQTS, this interval is longer than normal.

  • It can be:

    • Inherited (genetic): Passed down through families (LQT1, LQT2, LQT3, etc.).

    • Acquired: Caused by medications, electrolyte imbalances, or medical conditions.

  • Fainting (especially during exercise or stress)

    • Seizure-like activity

    • Heart palpitations

    • Sudden cardiac arrest (in severe cases)

    • Sometimes, no symptoms at all

    • Electrocardiogram (EKG/ECG)

    • Holter monitor or event monitor

    • Genetic testing

    • Exercise stress test

    • Family history review

  • Yes, but not curable. Treatment options include:

    • Beta-blockers

    • Lifestyle changes

    • Avoiding QT-prolonging medications

    • Implantable cardioverter defibrillator (ICD) in high-risk patients

  • Depends on the LQT type:

    • LQT1: Exercise, especially swimming

    • LQT2: Sudden noises or emotions

    • LQT3: Sleep or rest (slow heart rate)

  • Many people live full, active lives by managing triggers, taking medications, and working closely with their cardiologist.

  • Several drugs can make LQTS worse. There are lists online (like on crediblemeds.org) of QT-prolonging medications to avoid. Always consult your doctor or pharmacist.

  • It depends on your LQT type and personal risk level. Some activities may be restricted, while others can be safe under guidance. Always consult your cardiologist.

  • Yes, especially in inherited forms. First-degree relatives (parents, siblings, children) of someone with LQTS should be tested.

    • Inherited: You're born with it due to genetic mutations.

    • Acquired: It’s caused by outside factors like medications, low potassium/magnesium, or health conditions.

    • Wear a medical alert bracelet

    • Keep a list of safe/unsafe medications

    • Inform teachers, coaches, or employers

    • Have an emergency action plan in place

    • Get CPR /VLS training for family members

    • Get AED training for family members