
Frequently asked questions.
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Long QT Syndrome (LQTS) is a heart rhythm disorder that affects the way your heart beats. It can cause fast, irregular heartbeats (arrhythmias) that may lead to fainting, seizures, or even sudden cardiac arrest.
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The "QT" refers to a segment on an electrocardiogram (ECG or EKG) — it represents the time it takes the heart’s electrical system to recharge between beats. In LQTS, this interval is longer than normal.
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It can be:
Inherited (genetic): Passed down through families (LQT1, LQT2, LQT3, etc.).
Acquired: Caused by medications, electrolyte imbalances, or medical conditions.
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Fainting (especially during exercise or stress)
Seizure-like activity
Heart palpitations
Sudden cardiac arrest (in severe cases)
Sometimes, no symptoms at all
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Electrocardiogram (EKG/ECG)
Holter monitor or event monitor
Genetic testing
Exercise stress test
Family history review
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Yes, but not curable. Treatment options include:
Beta-blockers
Lifestyle changes
Avoiding QT-prolonging medications
Implantable cardioverter defibrillator (ICD) in high-risk patients
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Depends on the LQT type:
LQT1: Exercise, especially swimming
LQT2: Sudden noises or emotions
LQT3: Sleep or rest (slow heart rate)
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Many people live full, active lives by managing triggers, taking medications, and working closely with their cardiologist.
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Several drugs can make LQTS worse. There are lists online (like on crediblemeds.org) of QT-prolonging medications to avoid. Always consult your doctor or pharmacist.
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It depends on your LQT type and personal risk level. Some activities may be restricted, while others can be safe under guidance. Always consult your cardiologist.
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Yes, especially in inherited forms. First-degree relatives (parents, siblings, children) of someone with LQTS should be tested.
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Inherited: You're born with it due to genetic mutations.
Acquired: It’s caused by outside factors like medications, low potassium/magnesium, or health conditions.
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Wear a medical alert bracelet
Keep a list of safe/unsafe medications
Inform teachers, coaches, or employers
Have an emergency action plan in place
Get CPR /VLS training for family members
Get AED training for family members